Online Resources and Information
- Feeding the Flock (children's feeding issues)
- Congenital Heart Defects.com
- American Heart Association
- Mott's UM Children's congenital heart information page Heart Center Encyclopedia - Published by Cincinnati Children's Hospital Medical Center pediatric heart specialists
- Children's Cardiomyopathy Foundation
- CHD Online Handbook The Congenital Heart Information Network
- Children's Organ Transplant Association (COTA) The Heart Institute for Children
- Children's Heart Institute - How the Heart Works great site for both adults and kids!
- The Heart House (Children's Heart Institute)
Simple way to see how blood flows using a house as a diagram - Congenital Heart Surgeons Society
- MedicAlert - MedicAlert is much more than just a bracelet or pendant. MedicAlert is the combination of our 24-Hour Emergency Medical Information Services working together with your bracelet or pendant
- NICHCY - Compiles disability-related resources in each state, and creates State Resource Sheets. This handy resource sheet will help you locate organizations and agencies within your state that address disability-related issues
- Birth Defect Research for Children - Birth Defect Research for Children provides parents and expectant parents free fact sheets about the most common categories of birth defects
- Birth Defect Registry
Web Resources to learn about the Transplant Process
- Transplant Living
To help patients and their families learn more about the transplant process, UNOS' patient education, provides comprehensive information, resources and support for every stage of the transplant experience
ACHD Information and Websites
- University of Chicago Center for Adults with Congenital Heart Disease
- OHSU (Oregon Health & Science University) Health: Adult Congenital Heart Disease
- Cachnet Home Page Canadian Adult Congenital Heart Network
- Adult Congenital Heart Disease at Mayo Clinc
- Genetics Counceling for Adults (American Heart Association)
CHD Specific Websites
- Arrhythmias
- LongQT Organization
- SADS Foundation (Long QT)
- Barth Syndrome
- Aortic Valve Stenosis
- Atrioventricular Canal Defect (AVSD)
- Cardiomyopathy
- Down Syndrome Health Issues
- National Associaton for Down Syndrome
- Mayo Clinic: Ebstein's Anomaly
- Hypoplastic Right Heart Syndrome (HRHS)
- Kawasaki Disease Foundation
- National Marfan Foundation
- Patent Foramen Ovale
- Pulmonary Hypertension Total Anomalous Pulmonary Venous Return (TAPVR)
- Truncus Arteriosus (TA)
- Ventricular Septal Defect (VSD)
CHD Pediatric Hospitals
This list of hospital is strickly for informational purposes. Kids With Heart NACHD, Inc does not recommend nor endorse any specific hospital. If you have another pediatric CHD Hospital that you would like added to our list, please contact us.
- Children's Hospital of Wisconsin Heart Center
- Fairview Children's Hospital - Minneapolis, MN
- Sibley Heart Center at Children's Healthcare of Atlanta
- The Heart Institute for Children - Oak Lawn, IL
- Mott's University of Michigan Children's - Dr. Bove
- The Harvard (Boston) Cardiovascular Program
- The Children's Hospital of Philadelphia Congenital Heart Resource Center - Portland, OR
- Hall-Garcia Cardiology Associates
- Heart Information Service-Texas Heart Institute
- Clarian Health - Krannert Institute of Cardiology
- Texas Children's Hospital - Houston,TX
- Cleveland Clinic Foundation Pediatrics
- Arkansas Children's Hospital Pediatric Heart Center
- University of Chicago Hospitals
Grief Support and Information
Summer Camps
- Camp Del Corazon - California
- Camp Bon Coeur - Louisiana
- Camp Meridian - New Hampshire
- Camp Odayian - Minnesota
Medical Transport Information
Air Care Alliance
The only master listing of all known volunteer aviation organizations providing free medical air transport.
33 Holly Drive
Storrs, Connecticut 06268-2226
Phone: 860-429-2972
Fax: 603-806-7937
[email protected]
Airlifeline
Provides air transportation to ambulatory patients in need of financial assistance.
6133 Freeport Blvd
Sacramento, CA 95822
1-800-446-1231
Hours: M-F 7:30AM - 4:30PM PST
Phone: 916-429-2500
50 Fullerton Ct.
Suite 200 Sacramento, CA 95825
Phone: 916-641-7800
Fax: 916-641-0600
[email protected]
Corporate Angel Network
Fflies patient with 2 adults to necessary destination on a corporate jet that has empty seats available.
Westchester County Airport
Building One
White Plains, NY 10604
Phone: 914-328-1313
Hours: M-F 8:30-4:30 EST
info@corpangelnetwo rk.org
Lifeline Pilots
Need to have a letter from the doctor saying it is okay for the patient to fly. Provides free air transportation on private aircraft for health care and other compelling human needs.
Byerly Aviation Bldg. 3rd floor
6100 W. Dirksen Parkway
Peoria, IL 61607
Phone: 1-800-822-7972
309-697-6865
708-524-8937
Fax: 309-697-6541
nablake@lifelinepil ots.org
Mercy Medical Airlift
Our mission is to facilitate a charitable means of long distance medical air transport for all medically indigent, low-income and financially vulnerable patients thereby ensuring equal access to distant specialized medical treatment or to appropriate facilities and settings for continuing care.
4620 Haygood Rd., Suite 8
Virginia Beach, VA 23455
1-888-675-1405
(747) 318-9175 (757) 318-9107 (Fax) mercymed@aol. com
Miracle Flights For Kids
Founded in Green Valley, Nevada, in 1985, Miracle Flights For Kids is a nonprofit organization providing no cost air transportation for children and families to hospitals and specialized health care facilities around the country. There is no charge for any of our services. We will fly as far as needed, and as many times as necessary, to meet the needs of the families we serve.
Phone: 702-261-0494
Fax: 702-261-0497
National Patient Air Transport Helpline (NPATH)
Provides referrals to charitable air medical transportation.
PO Box 1940
Manassas, VA 20108-0804
Phone: 1-800-296-1217
703-361-1191
757-318-9145
Fax: 703-361-1792
[email protected]
Navy Marine Corps Relief Sociaety
Provides interest-free loans or grants to help with emergency needs such as emergency transportation, funeral expenses, medical/dental bills, food, rent, and utilities, and child care expenses. Also has visiting nurses performing house calls and instruction to mothers and newborns as well as gives out layettes (junior seabags) to new parents. They also have budget counseling which provides training, education, and remedial counseling.
Executive Director, Mrs. Presha Merritt
Quantico, VA 22134
Phone: 703-640-7137
Volunteer Pilots Association
Provides air transport to needy people for medical treatment.
PO Box 95
Hickory, PA 15340
Phone/Fax: 724-356-4007


