Who Are We?
Start counting... we're roughly 8 out of every 1,000 people (or 1 out of every 125, if you want a number you can get your head around.) We represent both genders and we are all ages. A million of us are adults, and about 800,000 of us are children.
We've made it through surgeries, hospital stays, infections, Endocarditis (infection of the heart), pacemakers, and heaven know what else. We've given gallons of blood, one vial at a time. We've fought back against tremendous odds. We've been so sick that we've scared the world's best doctors witless... and then amazed them even more when we've fought back.
We've celebrated our victories and we've mourned our losses. We know that most of those who came before us died, including 14 of the first 70 to have the Blalock-Taussig Shunt. We know that most of us shouldn't even be here and so we live every moment as if it is our last - because it could be.
We're Cardiac Kids and Heart Warriors. We have an amazing inner strength, but we are terribly fragile at the same time. We refer to our parents as Heart Dad and Heart Mom, and we use those titles as Badges of Honor. Why? Because they DESERVE them! They were the first ones to discover that a heart defect doesn't just break one heart, it breaks three.
We work, we play, we pay our taxes and we live our lives. We're in your community, in your church, in your school, in your office, and quite possibly in your home. We move a little slower, do some things a little differently, but we usually get along without causing a fuss.
We are people living with Congenital Heart Defects.
42 year old male with Tricuspid Atresia
We're excited to announce the first ever Kids With Heart Ride for Awareness! Brought to you by VanderVest Harley Davidson, Y100 radio, Scoreboards of Green Bay and Jimmy Seas. We'll be riding out from Scoreboards at noon on August 19th. Further details, exact route information, and a more detailed list of sponsors and raffle prizes will be announced in the coming weeks, but the route will head ...
on Monday, July 10, 2017
Just a reminder to everyone to please make every day Congenital Heart Defect Awareness Day! Check out our pins, magnets, and bears in the Awareness section of our store. Heart Defect Awareness Day is officially February 14th. But for those who are touched by it, we're aware of CHDs every day....
on Wednesday, January 11, 2017
As 2015 comes to a close, we would like to thank those who have made donations including matching gifts with their employers (especially my co-worker and our employer- Georgina Leanna and The Home Depot, Hu- Hot, special individuals, and the donation received from being nominated by an anonymous angel for a donation through the Charles Schwab Charitable Foundation. All of your donations enable ...
on Thursday, December 31, 2015