Providing support, education, and resources to those affected by congenital heart defects since 1985
Almost everyone knows someone affected by congenital heart defects and many of them think they are the only ones. Would this be you or someone you love? You are not alone, we are here for you.
It is our belief that education is power. Our goal is to provide you with the most complete resources available to make the decisions that are best for your "heart child" and your family.
Donations come in many shapes and sizes, some without it costing you a dime! We are a non-profit, IRS registered, 501 C 3 Organization. Therefore, all donations are tax-deductible and we thank you for your support!
Congenital Heart Defect Awareness Week-February 7th-14th
Friday, February 4, 2022
FDA Approves First in the World Device to Treat Patients with Congenital Heart Disease
Monday, January 24, 2022
Artificial heart valve can grow with kids, prevent repeat surgeries
Sunday, March 1, 2020
Wednesday, February 5, 2020
Third Annual Benefit (August 24th)
Sunday, August 11, 2019
Who Are We?
Start counting... we're roughly 8 out of every 1,000 people (or 1 out of every 125, if you want a number you can get your head around.) We represent both genders and we are all ages. A million of us are adults, and about 800,000 of us are children.
We've made it through surgeries, hospital stays, infections, Endocarditis (infection of the heart), pacemakers, and heaven know what else. We've given gallons of blood, one vial at a time. We've fought back against tremendous odds. We've been so sick that we've scared the world's best doctors witless... and then amazed them even more when we've fought back.
We've celebrated our victories and we've mourned our losses. We know that most of those who came before us died, including 14 of the first 70 to have the Blalock-Taussig Shunt. We know that most of us shouldn't even be here and so we live every moment as if it is our last - because it could be.
We're Cardiac Kids and Heart Warriors. We have an amazing inner strength, but we are terribly fragile at the same time. We refer to our parents as Heart Dad and Heart Mom, and we use those titles as Badges of Honor. Why? Because they DESERVE them! They were the first ones to discover that a heart defect doesn't just break one heart, it breaks three.
We work, we play, we pay our taxes and we live our lives. We're in your community, in your church, in your school, in your office, and quite possibly in your home. We move a little slower, do some things a little differently, but we usually get along without causing a fuss.
We are people living with Congenital Heart Defects.
42 year old male with Tricuspid Atresia