Kids With Heart NACHD

Providing support, education, and resources to those affected by congenital heart defects since 1985

Membership Information

Membership

Almost everyone knows someone affected by congenital heart defects and many of them think they are the only ones. Would this be you or someone you love? You are not alone, we are here for you.

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Book Store

It is our belief that education is power. Our goal is to provide you with the most complete resources available to make the decisions that are best for your "heart child" and your family.

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Donation Information

Donations

Donations come in many shapes and sizes, some without it costing you a dime! We are a non-profit, IRS registered, 501 C 3 Organization. Therefore, all donations are tax-deductible and we thank you for your support!

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Who Are We?

Steve CatoeStart counting... we're roughly 8 out of every 1,000 people (or 1 out of every 125, if you want a number you can get your head around.) We represent both genders and we are all ages. A million of us are adults, and about 800,000 of us are children.

We've made it through surgeries, hospital stays, infections, Endocarditis (infection of the heart), pacemakers, and heaven know what else. We've given gallons of blood, one vial at a time. We've fought back against tremendous odds. We've been so sick that we've scared the world's best doctors witless... and then amazed them even more when we've fought back.

We've celebrated our victories and we've mourned our losses. We know that most of those who came before us died, including 14 of the first 70 to have the Blalock-Taussig Shunt. We know that most of us shouldn't even be here and so we live every moment as if it is our last - because it could be.

We're Cardiac Kids and Heart Warriors. We have an amazing inner strength, but we are terribly fragile at the same time. We refer to our parents as Heart Dad and Heart Mom, and we use those titles as Badges of Honor. Why? Because they DESERVE them! They were the first ones to discover that a heart defect doesn't just break one heart, it breaks three.

We work, we play, we pay our taxes and we live our lives. We're in your community, in your church, in your school, in your office, and quite possibly in your home. We move a little slower, do some things a little differently, but we usually get along without causing a fuss.

We are people living with Congenital Heart Defects.

Steve Catoe
42 year old male with Tricuspid Atresia
South Carolina

Latest News

Herma Heart Institute designation

In recognition of the Herma Heart Center’s outstanding clinical care and outcomes, advancements in the field of research and transformational philanthropic support, Children’s Hospital of Wisconsin is proud to introduce its new designation: the Herma Heart Institute — the first such clinical institute for Children's Hospital of Wisconsin.

 A history of phi...

Posted by on Friday, October 6, 2017

New device can monitor mitochondria in the heart to predict cardiac arrest

A new device can assess in real time whether the body's tissues are receiving enough oxygen and, placed on the heart, can predict cardiac arrest in critically ill heart patients, report researchers at Boston Children's Hospital and scientists from Cambridge device maker Pendar Technologies. Their study, conducted in animal models, is the cover article in today's issue of Science Transl...

Posted by on Friday, October 6, 2017

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Kids With Heart National Association for Children's Heart Disorders, Inc. Disclaimer
The intention of this information is to give parents of children with congenital heart disorders a place to find information about specific disorders and other support resources. Kids with Heart National Association for Children's Heart Disorders, Inc. personnel are not doctors or medical personnel. In no way should any information found on this site be a substitute to professional medical care or attention from a qualified practitioner nor should it be interpreted as such. ALWAYS CHECK WITH YOUR CHILD'S DOCTOR IF YOU HAVE ANY QUESTIONS OR CONCERNS ABOUT ANY DIAGNOSIS, SYMPTOMS, OR TREATMENTS.

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