Who Are We?
Start counting... we're roughly 8 out of every 1,000 people (or 1 out of every 125, if you want a number you can get your head around.) We represent both genders and we are all ages. A million of us are adults, and about 800,000 of us are children.
We've made it through surgeries, hospital stays, infections, Endocarditis (infection of the heart), pacemakers, and heaven know what else. We've given gallons of blood, one vial at a time. We've fought back against tremendous odds. We've been so sick that we've scared the world's best doctors witless... and then amazed them even more when we've fought back.
We've celebrated our victories and we've mourned our losses. We know that most of those who came before us died, including 14 of the first 70 to have the Blalock-Taussig Shunt. We know that most of us shouldn't even be here and so we live every moment as if it is our last - because it could be.
We're Cardiac Kids and Heart Warriors. We have an amazing inner strength, but we are terribly fragile at the same time. We refer to our parents as Heart Dad and Heart Mom, and we use those titles as Badges of Honor. Why? Because they DESERVE them! They were the first ones to discover that a heart defect doesn't just break one heart, it breaks three.
We work, we play, we pay our taxes and we live our lives. We're in your community, in your church, in your school, in your office, and quite possibly in your home. We move a little slower, do some things a little differently, but we usually get along without causing a fuss.
We are people living with Congenital Heart Defects.
42 year old male with Tricuspid Atresia
Kids With Heart is excited to announce the Second Annual Kids With Heart Ride for Awareness, being held July 28th in Green Bay!
The motorcycle ride will begin at Vandervest Harley Davidson in Green Bay at 1 pm, and will return to Vandervest around 5 pm. Registration will begin at noon, at there will be a hot dog stand, staffed by our very own volunteers, during registration. We would li...
on Wednesday, May 30, 2018
This Tuesday, November 28th, Facebook and the Bill and Melinda Gates Foundation are teaming up to match donations to non-profits world wide. And with your help, Kids With Heart can be a part of this. Any donations made to Kids With Heart after 8 AM on Tuesday, November 28th, will be matched dollar for dollar. These donations are the primary source of funding for Kids With Hear...
on Monday, November 27, 2017
Kids With Heart National Assn for Children's Heart Disorders, Inc. is an independent 501 C 3 organization on our own.It has come to our attention that there are other organizations that have been using the Kids With Heart name for support groups for families of kids with congenital heart defects. We are, in no way, affiliated with any other groups, nor have we given them permis...
on Saturday, November 25, 2017