ONLINE RESOURCES AND INFORMATION
Heart Center Encyclopedia – Published by Cincinnati Children’s Hospital Medical Center pediatric heart specialists
MedicAlert – MedicAlert is much more than just a bracelet or pendant. MedicAlert is the combination of our 24-Hour Emergency Medical Information Services working together with your bracelet or pendant
CenterWatch – Information on a variety of clinical trials, FDA approved drugs, as well as patient and professional resources related to many medical conditions.
ACLS – valuable cardiac health and care information, including signs and symptoms of arrhythmia, and appropriate responses to significant symptoms. They also offer training courses for those who wish to expand their knowledge to application training.
WEB RESOURCES TO LEARN ABOUT THE TRANSPLANT PROCESS
Transplant Living – To help patients and their families learn more about the transplant process, UNOS’ patient education, provides comprehensive information, resources and support for every stage of the transplant experience
ACHD INFORMATION AND WEBSITES
CHD INFORMATION WEBSITES
CHD PEDIATRIC HOSPITALS
This list of hospital is ONLY for informational purposes. Kids With Heart NACHD, Inc does not recommend nor endorse any specific hospital. If you have another pediatric CHD Hospital that you would like added to our list, please contact us.
Fairview Children’s Hospital – Minneapolis, MN
Sibley Heart Center at Children’s Healthcare of Atlanta
The Heart Institute for Children – Oak Lawn, IL
Texas Children’s Hospital – Houston,TX
GRIEF SUPPORT AND INFORMATION
Camp Del Corazon – California
Camp Bon Coeur – Louisiana
Camp Meridian – New Hampshire
Camp Odayin – Minnesota and Wisconsin
Camp Rhythm – Missouri
MEDICAL TRANSPORT INFORMATION
Air Care Alliance – The only master listing of all known volunteer aviation organizations providing free medical air transport.
33 Holly Drive
Storrs, Connecticut 06268-2226
Airlifeline – Provides air transportation to ambulatory patients in need of financial assistance.
6133 Freeport Blvd
Sacramento, CA 95822
Hours: M-F 7:30AM – 4:30PM PST
50 Fullerton Ct.
Suite 200 Sacramento, CA 95825
Phone: 916-641-7800 / Fax: 916-641-0600
Corporate Angel Network – Flies patient with 2 adults to necessary destination on a corporate jet that has empty seats available.
Westchester County Airport
White Plains, NY 10604
Hours: M-F 8:30-4:30 EST
Our mission is to facilitate a charitable means of long distance medical air transport for all medically indigent, low-income and financially vulnerable patients thereby ensuring equal access to distant specialized medical treatment or to appropriate facilities and settings for continuing care.
4620 Haygood Rd., Suite 8
Virginia Beach, VA 23455
(747) 318-9175 (757) 318-9107 (Fax) mercymed@aol. com
Founded in Green Valley, Nevada, in 1985, Miracle Flights For Kids is a nonprofit organization providing no cost air transportation for children and families to hospitals and specialized health care facilities around the country. There is no charge for any of our services. We will fly as far as needed, and as many times as necessary, to meet the needs of the families we serve.
Provides interest-free loans or grants to help with emergency needs such as emergency transportation, funeral expenses, medical/dental bills, food, rent, and utilities, and child care expenses. Also has visiting nurses performing house calls and instruction to mothers and newborns as well as gives out layettes (junior seabags) to new parents. They also have budget counseling which provides training, education, and remedial counseling.
Executive Director, Mrs. Presha Merritt
Quantico, VA 22134
Volunteer Pilots Association
Provides air transport to needy people for medical treatment.
PO Box 95
Hickory, PA 15340