ONLINE RESOURCES AND INFORMATION

• Congenital Heart Defects.com

• American Heart Association

• Mott’s UM Children’s congenital heart information page

• Heart Center Encyclopedia – Published by Cincinnati Children’s Hospital Medical Center pediatric heart specialists

• Children’s Cardiomyopathy Foundation

• MedicAlert – MedicAlert is much more than just a bracelet or pendant. MedicAlert is the combination of our 24-Hour Emergency Medical Information Services working together with your bracelet or pendant

• CenterWatch – Information on a variety of clinical trials, FDA approved drugs, as well as patient and professional resources related to many medical conditions.

• ACLS – valuable cardiac health and care information, including signs and symptoms of arrhythmia, and appropriate responses to significant symptoms.  They also offer training courses for those who wish to expand their knowledge to application training.

WEB RESOURCES TO LEARN ABOUT THE TRANSPLANT PROCESS

• Transplant Living – To help patients and their families learn more about the transplant process, UNOS’ patient education, provides comprehensive information, resources and support for every stage of the transplant experience

ACHD INFORMATION AND WEBSITES

• University of Chicago Center for Adults with Congenital Heart Disease

• Cachnet Home Page Canadian Adult Congenital Heart Network

• Adult Congenital Heart Disease at Mayo Clinc

• CDC-Minimizing Risks of Acquired Heart Disease

CHD INFORMATION WEBSITES

• SADS Foundation (Long QT)

• Cardiomyopathy

• Down Syndrome Health Issues

• National Associaton for Down Syndrome

• Kawasaki Disease Foundation

• Pulmonary Hypertension 

CHD PEDIATRIC HOSPITALS

This list of hospital is ONLY for informational purposes.  Kids With Heart NACHD, Inc does not recommend nor endorse any specific hospital.  If you have another pediatric CHD Hospital that you would like added to our list, please contact us.

• Heart Institute at Cincinnati Children’s Hospital

• Children’s Hospital of Wisconsin Heart Center

• Fairview Children’s Hospital – Minneapolis, MN

• Sibley Heart Center at Children’s Healthcare of Atlanta

• Children’s Hospital Wisconsin Heart Center

• The Heart Institute for Children – Oak Lawn, IL

• Mott’s University of Michigan Children’s

• The Harvard (Boston) Cardiovascular Program

• The Children’s Hospital of Philadelphia

• Texas Heart Institute

• Texas Children’s Hospital – Houston,TX

• Cleveland Clinic Foundation Pediatrics

• Arkansas Children’s Hospital Pediatric Heart Center

• University of Chicago Hospitals

• St Louis Children’s Hospital Cardiology and Cardiothoracic Surgery

GRIEF SUPPORT AND INFORMATION

• MISS Foundation

• Compassionate Friends

SUMMER CAMPS

• Camp Del Corazon – California

• Camp Bon Coeur – Louisiana

• Camp Meridian – New Hampshire

• Camp Odayin – Minnesota and Wisconsin

• Camp Rhythm – Missouri

MEDICAL TRANSPORT INFORMATION

Air Care Alliance – The only master listing of all known volunteer aviation organizations providing free medical air transport.

33 Holly Drive
Storrs, Connecticut 06268-2226
Phone: 860-429-2972
Fax: 603-806-7937
rol.murrow@evac.org

Airlifeline – Provides air transportation to ambulatory patients in need of financial assistance.

6133 Freeport Blvd
Sacramento, CA 95822
1-800-446-1231
Hours: M-F 7:30AM – 4:30PM PST
Phone: 916-429-2500
50 Fullerton Ct.
Suite 200 Sacramento, CA 95825
Phone: 916-641-7800 / Fax: 916-641-0600
staff@airlifeline.org

Corporate Angel Network – Flies patient with 2 adults to necessary destination on a corporate jet that has empty seats available.

Westchester County Airport
Building One
White Plains, NY 10604
Phone: 914-328-1313
Hours: M-F 8:30-4:30 EST

Mercy Medical Airlift 

Our mission is to facilitate a charitable means of long distance medical air transport for all medically indigent, low-income and financially vulnerable patients thereby ensuring equal access to distant specialized medical treatment or to appropriate facilities and settings for continuing care.

4620 Haygood Rd., Suite 8
Virginia Beach, VA 23455
1-888-675-1405
(747) 318-9175 (757) 318-9107 (Fax) mercymed@aol. com

Miracle Flights For Kids

Founded in Green Valley, Nevada, in 1985, Miracle Flights For Kids is a nonprofit organization providing no cost air transportation for children and families to hospitals and specialized health care facilities around the country. There is no charge for any of our services. We will fly as far as needed, and as many times as necessary, to meet the needs of the families we serve.

Phone: 702-261-0494
Fax: 702-261-0497

Navy Marine Corps Relief Society

Provides interest-free loans or grants to help with emergency needs such as emergency transportation, funeral expenses, medical/dental bills, food, rent, and utilities, and child care expenses. Also has visiting nurses performing house calls and instruction to mothers and newborns as well as gives out layettes (junior seabags) to new parents. They also have budget counseling which provides training, education, and remedial counseling.
Executive Director, Mrs. Presha Merritt
Quantico, VA 22134
Phone: 703-640-7137

Volunteer Pilots Association
Provides air transport to needy people for medical treatment.

PO Box 95
Hickory, PA 15340
Phone/Fax: 724-356-4007