Who Are We?
Start counting... we're roughly 8 out of every 1,000 people (or 1 out of every 125, if you want a number you can get your head around.) We represent both genders and we are all ages. A million of us are adults, and about 800,000 of us are children.
We've made it through surgeries, hospital stays, infections, Endocarditis (infection of the heart), pacemakers, and heaven know what else. We've given gallons of blood, one vial at a time. We've fought back against tremendous odds. We've been so sick that we've scared the world's best doctors witless... and then amazed them even more when we've fought back.
We've celebrated our victories and we've mourned our losses. We know that most of those who came before us died, including 14 of the first 70 to have the Blalock-Taussig Shunt. We know that most of us shouldn't even be here and so we live every moment as if it is our last - because it could be.
We're Cardiac Kids and Heart Warriors. We have an amazing inner strength, but we are terribly fragile at the same time. We refer to our parents as Heart Dad and Heart Mom, and we use those titles as Badges of Honor. Why? Because they DESERVE them! They were the first ones to discover that a heart defect doesn't just break one heart, it breaks three.
We work, we play, we pay our taxes and we live our lives. We're in your community, in your church, in your school, in your office, and quite possibly in your home. We move a little slower, do some things a little differently, but we usually get along without causing a fuss.
We are people living with Congenital Heart Defects.
42 year old male with Tricuspid Atresia
The following article was written as a resource for Kids With Heart members, and others with Congenital Heart Defects, by Lisa Giorgetti, a community liason for Social Security Disability Help.
By: Lisa Giorgetti
In families where there is a loved one who is living with congenital heart defects, it’s not uncommon for financial strain to occur. In some cases, individua...
on Monday, October 20, 2014
Surgeons at a New York hospital have credited 3D printing with helping to save the life of a 2-week-old baby who required complicated heart surgery.
Using MRI scan data, Morgan Stanley Children’s Hospital in New York City 3D printed a copy of the child’s heart, which was both riddled with holes and structured unusually.
Surgery was going to be complicated and dangero...
on Monday, October 20, 2014
In partnership with maxon precision motors, grant funds are being used to modify the adult Aortix device for use in children born with single ventricle heart defects.
Houston, Texas – Procyrion Inc., a medical device firm developing the first catheter-deployed circulatory assist device intended for long-term use in the treatment of chronic heart failure, has been awarded a $50,0...
on Sunday, July 20, 2014