A Heart Valve That Grows Along With a Child Could Reduce Invasive Surgeries

Clinical trials have started for the first prosthetic pulmonary valve replacement that is specifically designed for pediatric patients and can expand over time inside a child’s anatomy.  Instead of having invasive replacement surgeries every few years, as is the practice now, a child can have the valve fitted to their individual body size and, if […]

Congenital Heart Defect Awareness Week-February 7th-14th

I recently saw some moms being discouraged when it comes to their efforts for Congenital Heart Defect Awareness.  Any effort you make has an impact, whether you realize it or not. Your effort may be something as life changing as sharing your experience with a mom who does not yet know her unborn child has […]

FDA Approves First in the World Device to Treat Patients with Congenital Heart Disease

New implant device provides less invasive option to treat pulmonary valve regurgitation for patients with a native or surgically-repaired right ventricular outflow tract Today, the U.S. Food and Drug Administration approved the first in the world non-surgical heart valve to treat pediatric and adult patients with a native or surgically-repaired right ventricular outflow tract (RVOT), […]

Artificial heart valve can grow with kids, prevent repeat surgeries

Originally posted at upi.com/Health_News Current artificial heart valves are fixed in size, meaning children need to get larger ones as they grow, but a new design could eliminate the need for continued replacement. ByHealthDay News A new design means children could keep the same artificial heart valve until adulthood, and it could also benefit adults with […]

CHD Awareness

Many heart parents are quite new to the CHD world but we would just like to let you know how far CHD awareness has actually come. In 1999, Jeanne Imperati spearheaded the first ever effort for a CHD awareness day. It was February 14th and there were moms from everywhere going to their governors to get their states […]


Kids with Heart is pleased to announce it’s third annual benefit event!  Come join us at Jackson’s Point in Seymour Wisconsin, with a motorcycle ride, raffles, food, and live music! Ride registration starts at 10 am, $15 a bike, $5 for a second rider.  Ride goes 11 approximately 2:30, with 50/50 raffles on the ride.  […]


Kids With Heart is excited to announce the Second Annual Kids With Heart Ride for Awareness, being held July 28th in Green Bay! The motorcycle ride will begin at Vandervest Harley Davidson in Green Bay at 1 pm, and will return to Vandervest around 5 pm. Registration will begin at noon, at there will be […]


This Tuesday, November 28th, Facebook and the Bill and Melinda Gates Foundation are teaming up to match donations to non-profits world wide.  And with your help, Kids With Heart can be a part of this.  Any donations made to Kids With Heart after 8 AM on Tuesday, November 28th, will be matched dollar for dollar.  […]


Kids With Heart National Assn for Children’s Heart Disorders, Inc. is an independent 501 C 3 organization on our own. It has come to our attention that there are other organizations that have been using the Kids With Heart name for support groups for families of kids with congenital heart defects. We are, in no […]


If your heart skips a beat every time you think about treating yourself to black licorice — it may know something you don’t. If you eat too much of it, your heart actually may skip a beat or two, or even more. Though it happens rarely, black licorice can cause an irregular heartbeat in some people, says […]