Kids With Heart Ride for Awareness

We're excited to announce the first ever Kids With Heart Ride for Awareness! Brought to you by VanderVest Harley Davidson, Y100 radio, Scoreboards of Green Bay and Jimmy Seas. We'll be riding out from Scoreboards at noon on August 19th. Further details, exact route information, and a more detailed list of sponsors and raffle prizes will be announced in the coming weeks, but the route will head ...

Posted by John Rintamaki on Monday, July 10, 2017

Heart Defect Awareness-Not Just February 14th

Just a reminder to everyone to please make every day Congenital Heart Defect Awareness Day! Check out our pins, magnets, and bears in the Awareness section of our store.  Heart Defect Awareness Day is officially February 14th.  But for those who are touched by it, we're aware of CHDs every day.


Posted by John Rintamaki on Wednesday, January 11, 2017

Thank You to Our Supporters

As 2015 comes to a close, we would like to thank those who have made donations including matching gifts with their employers (especially my co-worker and our employer- Georgina Leanna and The Home Depot, Hu- Hot, special individuals, and the donation received from being nominated by an anonymous angel for a donation through the Charles Schwab Charitable Foundation. All of your donations enable ...

Posted by John Rintamaki on Thursday, December 31, 2015

Common Antibiotics Cause Arrhythmias, Death And Everything Else

Shocking news—unless you are a physician or know healthcare—that commonly used antibiotics can cause death!

This time, the villains are macrolide antibiotics—Azithromycin (Zithromax), Clarithromycin (Biaxin), and Erythromycin.

In a large meta-analysis, studies involving 20,779,963 participants were analyzed. The authors analyzed risk of death from any ...

Posted by John Rintamaki on Monday, December 7, 2015

Cardiac Events Tied to Certain Antibiotics

by Will Boggs MD
Reuters Health

NEW YORK (Reuters Health) -- Macrolide antibiotic use is associated with an increased risk of sudden cardiac death and ventricular tachyarrhythmias, researchers from China report.
Numerous case reports and cohort studies have suggested an association between macrolide antibiotics and arrhythmia-related cardiac effects, but other studies have fai...

Posted by John Rintamaki on Tuesday, November 17, 2015

United Healthcare offering Grant Support for Families

Medical Grants Available for Families needing Assistance with Medical Expenses

The UnitedHealthcare Children’s Foundation is seeking grant applications from families in need of financial assistance for their child’s health care treatments, services or equipment not covered, or not fully covered, by their commercial health insurance plan. Qualifying families can receive up to $5,000 per grant with a lifetime maximum of $10,000 per child. Children must be ages&n...

Posted by John Rintamaki on Friday, March 20, 2015

Congenital Heart Defects and Social Security Disability Benefits

The following article was written as a resource for Kids With Heart members, and others with Congenital Heart Defects, by Lisa Giorgetti, a community liason for Social Security Disability Help.

By: Lisa Giorgetti

In families where there is a loved one who is living with congenital heart defects, it’s not uncommon for financial strain to occur. In some cases, individua...

Posted by John Rintamaki on Monday, October 20, 2014

3D printed heart saves baby’s life as medical technology leaps ahead

Surgeons at a New York hospital have credited 3D printing with helping to save the life of a 2-week-old baby who required complicated heart surgery.

Using MRI scan data, Morgan Stanley Children’s Hospital in New York City 3D printed a copy of the child’s heart, which was both riddled with holes and structured unusually.

Surgery was going to be complicated and dangero...

Posted by John Rintamaki on Monday, October 20, 2014

$50,000 pediatric device innovation grant awarded to Procyrion

In partnership with maxon precision motors, grant funds are being used to modify the adult Aortix device for use in children born with single ventricle heart defects.

Houston, Texas – Procyrion Inc., a medical device firm developing the first catheter-deployed circulatory assist device intended for long-term use in the treatment of chronic heart failure, has been awarded a $50,0...

Posted by John Rintamaki on Sunday, July 20, 2014

SickKids-led study uncovers novel gene that causes rare congenital heart defect

TORONTO – Congenital heart defects (CHD) are the most common birth defect affecting one in 100 children worldwide. The cause of heart defects is understood in only about 20 per cent of cases, but the other 80 per cent remain unknown. In a novel study led by The Hospital for Sick Children (SickKids), researchers offer insight into the cause of a subtype of congenital heart defects called a...

Posted by John Rintamaki on Saturday, April 5, 2014